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Today is March 28, 2015 - Stamford, CT 06902  

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Saturday, March 28th, 2015

  • Dravet Syndrome Foundation Butterfly Bash | 6:30pm - 11:30pm | Charity, Fundraiser
    Dravet Syndrome Foundation Butterfly Bash - FOR IMMEDIATE RELEASE Contact: Amanda Renz
    O: 203-392-1950
    A Benefit for Dravet Syndrome Foundation
    WEST HAVEN, CT JANUARY 23, 2015 – The Dravet Syndrome Foundation is pleased to welcome Mrs. Susan Axelrod, as our Gala Honoree for the 7th annual DSF Butterfly Bash: A Benefit for Dravet Syndrome Foundation which will take place on Saturday, March 28, 2015.
    Susan Axelrod is Chair and founding member of Citizens United for Research in Epilepsy (CURE). Under Susan’s leadership, CURE has successfully redefined the goals of epilepsy research as “no seizures, no side effects.” CURE funds cutting-edge research grants exploring new areas and also sponsors landmark conferences. Susan serves on the NIH’s National Advisory Neurological Disorders and Stroke Council and also as a consumer reviewer for the Peer Reviewed Medical Research Program in the Congressionally Directed Medical Research Program within the Department of Defense. She has been the recipient of numerous awards and honors for her passionate advocacy. Susan, a mother of three, resides in Chicago and Washington, DC with her husband David. Her oldest child, Lauren, began having uncontrollable seizures at seven months old, which have caused significant developmental delays and for which no cause has been identified. After 18 desperate years spent trying to control her seizures—over 20 medications, special diets, an electronic implant, and repeated surgical evaluations—Lauren finally achieved seizure freedom in 2000. Lauren now lives and works in a supported residential program in Chicago.
    The Spirit of Hope Award has been presented annually to volunteers whose dedication through service to DSF is truly outstanding and inspiring. This year, we are honoring the Ried Family of Fort Mill, SC. Misty and Ben are the proud parents to two beautiful children, Braxton and Allie. Seven year old Braxton was diagnosed with Dravet syndrome when he was just 15 months old. When asked what DSF means to them, Misty's reply was simple - "Hope". Since 2010 the Ried family has been helping to make hope very real to so many.
    Dravet Syndrome Foundation, is a 501(3)c nonprofit organization based in Connecticut whose mission is to aggressively raise research funds for Dravet syndrome and related epilepsies, while providing support to affected individuals and families.
    Dravet Syndrome is a rare and catastrophic form of intractable epilepsy that begins in infancy and for which there is currently no cure. These children experience multiple seizure types that increase in frequency as they get older. Seizure control in this syndrome is poor with the current medical therapies that are available. Developmental delays appear during the second year of life, although the severity varies among affected children. Dravet syndrome has no geographic or ethnic boundaries.
    The venue for this event will be the Hyatt Regency Greenwich in Greenwich, CT. This year’s event is Masquerade Ball themed and will feature silent and live auctions, dinner, and dancing to music by the band Hot House. It will take place on Saturday, March 28, 2015 from 6:30-11:30 PM. Our sponsors include Presenting Sponsor, Insys Therapeutics, as well as Bunge, Zogenix, Inc., Lundbeck, Inc., Warren Lammert, GW Pharmaceuticals, Nutricia North America, and Transgenomic.

    Tickets are available for the DSF Butterfly Bash for $175 each. To become a sponsor, purchase tickets, or
    make a donation, please contact Amanda Renz at 203-392-1950 or by email at

    Learn more at our website

    Contact: Amanda Renz. Phone: 203.392.1950.

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  • Congregation for Humanistic Judaism Yom Ha'shoah (Holocaust Remembrance) Program | 7:30pm - 10:00pm | Religious Events, Holocaust, remembrance, Yom Ha'shoah, Yom Hashoah
    Congregation for Humanistic Judaism Yom Ha'shoah (Holocaust Remembrance) Program - Join the Congregation for Humanistic Judaism as we remember the atrocities of the Holocaust and commemorate the acts of heroism and resistance. The evening will consist of the short film, "Why we Remember the Holocaust", a reading of Robert Mauro's play, "Children of the Holocaust" by local students, "Bystander or Upstander" project presentations by Fairfield University students, a reading by Westport poet Stehen Herz from his latest Holocaust book, Marked as well as personal accounts from local survivors.

    The program is free,open to the public and suitable for middle-school children and especially Mitzvah class students.

    Learn more at our website

    Contact: Congregation for Humanistic Judaism. Phone: 203.293.8867.

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