Wobbly Feet Foundation - Unclassified

Contact Info

Wobbly Feet Foundation
6014 Winchester Place
Sarasota, Florida 34243Phone: 941.421.2503

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About Wobbly Feet Foundation

Wobbly Feet Foundation was created to provide education, an internet based support group and financial support to medical professionals who conduct scientific research for the improvement of symptoms or a cure of Ataxia Telangiectasia, as well as, provide financial support to families of a child diagnosed with Ataxia Telangiectasia for beneficial medical equipment and treatment.
Wobbly Feet Foundation was established by my husband Nick and I in 2009 after our son, Connor (now 10), was diagnosed with Ataxia Telangiectasia, a rare genetic and progressive neuro-degenerative Orphan Disease affecting approximately 500 children worldwide. As an Orphan Disease, A-T receives little to no federal or large pharmaceutical funding. There is neither currently a formal treatment nor a cure available, often limiting the life expectancy of a child with A-T to the early 20’s. WFF raises funds to financially aid A-T children with life improving and/or prolonging medical needs not covered by insurance, as well as, fund scientific research needed to discover a formal treatment and/or cure.

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