More About Wobbly Feet Foundation
Wobbly Feet Foundation was established by my husband Nick and I in 2009 after our son, Connor (now 10), was diagnosed with Ataxia Telangiectasia, a rare genetic and progressive neuro-degenerative Orphan Disease affecting approximately 500 children worldwide. As an Orphan Disease, A-T receives little to no federal or large pharmaceutical funding. There is neither currently a formal treatment nor a cure available, often limiting the life expectancy of a child with A-T to the early 20’s. WFF raises funds to financially aid A-T children with life improving and/or prolonging medical needs not covered by insurance, as well as, fund scientific research needed to discover a formal treatment and/or cure.
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